A beautiful woman with an extremely rare allergy to water has revealed the tragic struggle of her day-to-day life.
Meet Niah Selway, the lady with extremely rare allergic to water. She is in her early 20s.
Her condition is in such a way that it doesn’t affect her organs when she drinks water but rather gets affected when water comes in contact with her skin.
She revealed in an interview that even her own tears to sweat and urine can cause an allergic reaction. What this means is that when she gets reactions she dare not cry.
She can’t do much exercise since the sweat too can cause a reaction. Niah has to experience severe burns for hours anytime she bathed her body.
The sad thing is medical professionals are yet to find the cause and treatment. Although she has been getting the treatment she disclosed that No medication or treatment has had a substantial effect.
She has Aquagenic Pruritus, an allergy that only affects very few people worldwide and
You have aquagenic itch, an allergy that affects only a very few people worldwide and has no known cause.
This rare condition means that although
Niah’s organs are unaffected and she is still able to drink water, liquids cannot come into contact with her skin, and everything from her own tears to sweat and urine can trigger allergic reactions.
Her symptoms are so severe that she often falls asleep from exhaustion after a reaction and has been confined to home as well as trying to order medication.
Despite being under the supervision of specialists for nearly four years, medical professionals have yet to discover the cause.
Niah, is known on YouTube as the “Water Allergic Girl”.
Below is complete information about your condition. I am suffering very severely and no drugs or treatments have suffered from Tam very severely, and no drugs or treatment have had any substantial effect. No matter where the water touches me, if a drop touches my arm, the pain will spread to the back and chest, sometimes to the whole body. “When I take a shower, my whole body burns for hours and hours.
Over time / I’ve developed a routine, it’s painful either way, but I’ve found ways to make it a little less traumatic. “For example, I no longer wash my hair in the bathroom, I do it separately to feel less pain.” There are so many things that people don’t think about, like sweat, urine and tears. “Sometimes I have a reaction in my body
I start to cry about it and I also have one on my face.
It’s basically a disability due to things I can’t do anymore. “In the morning I go to the bathroom and I have an allergic reaction to the first thing I do. Also I can’t get much exercise besides yoga and walking. Because I can’t sweat and on hot days I have to get stuck in front of the fan.” My day is working around my pain. “
Niah experienced her first reactions at age five, got worse during puberty, and eventually peaked in the past two years.
He said: “Initially I had every ten showers.” The doctors showed no concern about it, so I thought maybe I wasn’t good at managing the pain. “Then in my teens, it became every shower or bath and it got to the point where I couldn’t ignore it.”
Niah’s extreme symptoms made her unable to perform basic daily activities and baffled doctors. When my condition got worse, I always worried about my friends leaving me because I couldn’t do things with them, like going out and dancing. “But they’re great, they’re really understanding and go out of their way to try and see me.”
Niah, who works for an insurance company, was forced to take a break from work due to her condition.
Now that she can barely leave the house, she will soon be considered unable to work. Niah said, “There are days when my skin is horrible from time to time and I spend my time taking care of my illness.” The idea of rain is also scary, so I never go out if there is a chance it will rain. I’m in my bubble trying to cope with the pain and do what I can when it stops.
One of Niah’s best childhood memories was’ swimming, and her favorite in adulthood when she first dived
Tenerife in 2013.
He said, “A lot of projects on my bucket list were water-related things, like swimming with sharks.
However, their own difficulties permitted it
Niah to grow and find new strength and faith in herself. He added: “Most people with Aquagenic
Itching seems to find some sort of cure or treatment, while for me it has nothing
It worked. It’s hard to watch someone else find relief while it just doesn’t work on you. “
In early 2018, Niah realized that her illness would not allow her to lead a normal life.
She attributes her strength to her parents Bob and Antonia and her boyfriend Mark.
In addition to its online support
YouTube channel, which has more than 100,000 subscribers who have helped her find joy in the midst of her daily struggles.
Niah said: I’ve stopped focusing on what’s going to happen and try to make it as positive as possible now. “My family has been fantastic, even in the little things, like washing dishes.” They just take away all water-related responsibilities and have adapted their lives to mine. He said: “I have acquired the ability to enjoy the little things.” And don’t focus on the future, on the fact that I may not be able to work or have children. I only have time for positivity and people love.
If you weigh how much of my time I spend in pain, I don’t think I should waste any of what’s left.
Tam is less concerned with what others do, what they do, what they think.
I’m just trying to do my best with the two hours I have with no allergic reactions. “
Dr. Adil Sheraz, dermatologist consultant e
The British Skin Foundation spokesperson said:
Aquagenic itch is a rare and painful condition that causes severe itching almost immediately upon contact with water. “There are no visible changes in the skin, the itch can last an hour or more.
The underlying causes of BP remain unknown, proposed theories include a breakdown of mast cells leading to histamine and thus itching.
Although this is a rare condition, it is probably underestimated and misdiagnosed. “